Plans have changed again... there is a heart problem

So, we went in Monday the 18th to see the kidney doctor and to get an Echo done on Dominicks heart. The kidney doctor said his kidney is doing better and they will just keep a close eye on it to make sure it can handle all the work. We have to do another heart test to make sure Dominick was strong enough for the next phase of chemo... well it isn't. I do not really understand what the numbers mean, but he was around a 16 when we went the first time, and he needed to be a 27 to start this phase of chemo. Before we left the hospital on July 2nd he was a 26 so everyone was positive it was going to improve to be a 27 by Friday July 22nd. Well we got the results and he is back down to around a 18. This causes 2 things... 1- he can't have the Chemo he was mapped out to have. So now he is being admitted back to Lomda Linda Friday the 22nd to have a 5 day/6 hours a day chemo. This is a more intense chemo but wont hurt his heart so as for now this is our best bet. 2- the fact his heart is not better is making the doctors think something is also wrong with his heart. While we are at Lomda Linda for the 5 days a peds cardiologist will come see us and do some test to see why his heart is not getting better. We are just praying it is something that can be fixed with meds and praying that he does not have anything seriously wrong.

I am just lately at a lost for words... I don't understand why all the bad luck and/or what ryan or I did to deserve this. I just feel like Ryan and I have been through enough, give us a freaking break! I could go on and on about how upset I am, but the truth of the matter is "it is what it is" so I have to deal with it. The only positive still is that this little champ is still so happy and amazing! I swear everytime they give us more bad news I think they are reading another baby's chart, because this one is too happy to have so many things wrong!

I do have positives to being in a hospital... you don't have to wear make-up! (the first few days last time I did, then started looking around at the other moms and thought what am I doing!) next, you can stay in PJs all day :) my favorite is the throw away bottles and the endless supply of formula and water you get when you ring your red button :) No washing bottles and no worrys about running out of water or formula! LAST in the middle of the night they come in and help you with whatever you need :) I did almost 3 weeks last time, 5 days wont be to bad :)

thanks again for all the support and love

Thought I would throw up my new favorite family picture :)